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Author Topic: Our 2nd child  (Read 601 times)

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nicolejoy

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Our 2nd child
« on: February 28, 2010, 08:38:09 PM »
Hi all,

I want to request prayer for our 2nd child, due in July. We've recently found out that she has what's called Skeletal Dysplasia. There are 200+ different types and in 55% of cases, the baby doesn't make it to 6 weeks old - quite often the bub is stillborn. In most of the other 45% of cases, the baby will be dwarfed but mentally fine, life expectancy is normal, they can lead a normal life but just with their physical disabilities...

I've started a blog at www.nicolejoy81.blogspot.com with more information and all, so feel free to have a read if you want...

Please pray most of all for the baby to live. The main thing that causes death in these cases is when the ribcage is too small and the lungs have no room to develop, so please specifically pray that the chest is large enough for healthy lungs to develop! Pray also for wisdom for me and Bernard and for good medical care throughout the pregnancy.
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The Purple Fuzzy

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Re: Our 2nd child
« Reply #1 on: February 28, 2010, 08:44:46 PM »
Praying for yall. *HUGS*
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MelodyB

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Re: Our 2nd child
« Reply #2 on: March 01, 2010, 12:28:50 AM »
Wow Nic. I will be praying. God knows, and He is able.
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nicolejoy

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Re: Our 2nd child
« Reply #3 on: March 01, 2010, 01:46:45 AM »
Mel - it was actually you who inspired me to come over here and post, after your comment on Facebook. And I figure the more people praying, the better!! It surely can't harm anything at least ;) ;)
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MelodyB

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Re: Our 2nd child
« Reply #4 on: March 01, 2010, 08:26:44 AM »
Well, we sure will be praying for Baby Luk #2.

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baristagirl

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Re: Our 2nd child
« Reply #5 on: March 01, 2010, 04:40:52 PM »
definitly praying!
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Niki

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Re: Our 2nd child
« Reply #6 on: March 01, 2010, 09:07:44 PM »
I hate this for y'all. I pray God heals your precious baby.
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Dew-Ax-238

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Re: Our 2nd child
« Reply #7 on: March 01, 2010, 09:54:08 PM »
YEs, I will be praying and will add you to our churches prayer list.
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RainbowJingles

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Re: Our 2nd child
« Reply #8 on: March 01, 2010, 11:39:09 PM »
**HUGS** Nik
Praying for you, girlie.
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almondjoy

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Re: Our 2nd child
« Reply #9 on: March 02, 2010, 12:34:17 AM »
Praying here as well.
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Re: Our 2nd child
« Reply #10 on: March 08, 2010, 11:22:43 AM »
I've BEEN praying, but it can't hurt to remind you here, as well.

*sends hugs and wishes there were something more she could do*

~Ruby
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nicolejoy

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Re: Our 2nd child
« Reply #11 on: March 08, 2010, 05:31:02 PM »
I've got my next dr's appt on Friday, should find out more info then...

Thanks all for praying!!
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titushome

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Re: Our 2nd child
« Reply #12 on: March 10, 2010, 10:58:36 AM »
Visited your blog (thanks Ruby).  My wife and I are praying for you and your family, especially the new little one.
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nicolejoy

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Re: Our 2nd child
« Reply #13 on: March 11, 2010, 09:57:53 PM »
Just got back from the doc's (haven't updated my blog yet) - it's pretty much the same news, the limbs are still measuring short but the head and body are still normal. I'm taking it as good news because there's nothing right now that specifically says that the baby won't be able to live - but it's still a step by step process... kinda frustrated that the doc "can't" be more blunt about things - but I think in this day and age, they can't be too quick to diagnose and give the odds and all that... so annoying...
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RainbowJingles

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Re: Our 2nd child
« Reply #14 on: March 12, 2010, 11:09:43 AM »
Nic: have you done any internet research on the symptoms that they *are* able to name?

**HUGS** for you and your family

Praying for you.
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nicolejoy

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Re: Our 2nd child
« Reply #15 on: March 13, 2010, 12:51:22 AM »
I've done my own research and even think that it may be one of two or three different things based on the symptoms... I just think that I should be getting more information and ideas from my doctor than from the internet... I go to a different doc on Monday and I might see if he is a bit more forthcoming. If he's not, I might try looking for another doctor...
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Newsman

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Re: Our 2nd child
« Reply #16 on: March 13, 2010, 03:27:43 AM »
Praying.


John
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nicolejoy

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Re: Our 2nd child
« Reply #17 on: May 12, 2010, 09:00:22 PM »
Just wanted to update...

At our 20 week scan, the doctor told us that he was leaning towards thinking that it was probably lethal because usually if it presents so early it is bad news...

And at our 28 week scan this week, the new doc said that it was most probably NON-lethal!!! PRAISE GOD!! I know that there are still health complications and all, our daughter will most likely have some form of dwarfism unless God performs a miracle - but I'm just happy that medically, she should be able to live :) :)

Keep praying please!! Because like I said, these things can have all kinds of health complications - and even know I know that our daughter will most likely live, I don't want her to suffer or be in pain or need countless surgeries to fix the imperfections in her body... I really don't mind if she ends up being 4 foot tall or 6 foot tall - but I want her to be able to have a happy, long life...
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Newsman

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Re: Our 2nd child
« Reply #18 on: May 13, 2010, 04:45:20 AM »
Praying.


John
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RainbowJingles

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Re: Our 2nd child
« Reply #19 on: May 13, 2010, 01:30:31 PM »
Praying for you all, Nic.

**HUGS**
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nicolejoy

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Re: Our 2nd child
« Reply #20 on: May 17, 2010, 04:17:04 PM »
Had the appointment with the geneticist yesterday - he thinks it's probably Diastrophic Dysplasia, the same kind of dwarfism as Matt Roloff from "Little People Big World". It could be a better diagnosis because there are a lot of problems with that kind of dwarfism that other types of dwarfism don't need to deal with - but at least it's non-lethal!! We won't know for sure until the bub is born though...
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nicolejoy

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Re: Our 2nd child
« Reply #21 on: June 18, 2010, 03:53:54 PM »
Just wanted to *bump* this thread. 6 weeks til my due date now, things are still much the same. Once the baby's born she'll have all kinds of genetic tests and x rays etc and we'll know more about exactly what it is and all that... Pray everything goes smoothly and the bub is healthy and happy :)
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Newsman

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Re: Our 2nd child
« Reply #22 on: June 19, 2010, 01:16:20 AM »
Praying.


John
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RainbowJingles

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Re: Our 2nd child
« Reply #23 on: June 21, 2010, 03:37:21 PM »
**HUGS** Nic and prays
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joyeuse

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Re: Our 2nd child
« Reply #24 on: July 24, 2010, 04:25:35 AM »
Hello everybody, i just got here, i was away and so busy all that time. I just would like to know if somebody has Nicols news with the litle and beauty baby? Hope things are alright
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